Christmas is over...thank God! It was an anxious and exhausting one for me. First of all, Drew is at a point in his Huntington's Disease progression where he can't really do anything to "help me out." So all cleaning, laundry, bed making, cooking, baking, bill paying, prescription filling, haircut and doctor appointments, grocery shopping, etc. are all dependent upon me. Add the holidays to the mixture and it's a real whammo!
In addition there is the dealing with all of his obsessions and messes he creates that I have to clean up. I never get mad at him but it's frustrating and exhausting to me. The obsessions. He will be on the couch covered in blankets, many, many blankets. Then he uncovers, stands up, rearranges the blankets and tries to get back down just to redo the process two minutes later. Then get up and go into the bathroom and come back, cover up then get up and go into the bedroom for nothing, then the kitchen, then back to the couch to lay down, stand up and repeat this process over and over and over and over. In addition he constantly mumbles "mmmm, mmmm, mmmm, mmmm, mmmmm." His poor brain is just being eating and who knows what parts are being deteriorated. I survive each day...along with him, not knowing what new HD adventures will be coming our way. I'm trying to care for him at home as much as possible as I don't want to have him reside in a "home" - but I don't know how much longer this can be done for his best interests. I woke up in October to find the glass top of the living room coffee table shattered. He fell into it. He loses balance and drops and spills things. That is not good for him. I'm sure I will know when the time is right if we have to make that decision.
This is my life now. - Jimmy
