It's been 10 years since I've been to Mackinac Island. It was just three months before Ray died. I was never ready to go back...but now I am. I made reservations about six weeks ago and Drew and I are leaving tomorrow, September 24, 2019. We are staying three nights...returning Friday, September 27. Drew has never been to the Island and he is really looking forward to it. I really wasn't wanting to spend the money but we both need a getaway and I want to do something with Drew while he is still mobile and mostly independent. I really don't know how much longer that will last.
Two weeks ago we found out that one of Drew's sister's (who was also suffering from Huntington's Disease) passed away. Apparently she was "skin and bones," could no longer talk and could not eat solid food anymore. She was four years older than Drew. This scares me because Drew has lost so much weight and he isn't gaining any. He is pretty much "skin and bones" right now. No one dies "FROM" HD, they die from complications that come from having HD (falling, choking, accidents, etc.). I feel that Drew's demise will be his weight loss. I'm afraid his body will shut down. As odd as it sounds I have prepared myself for this. I know it will happen and unless I die from some freak accident Drew WILL die before me - so I have to be ready. Of course Ray's death and aftermath prepared me for this type of thing. Drew and I have already discussed cremation, burial site, etc. I guess I need to ask him what type of "service" he would like. This, of course, may be 10 years down the road but it could be months down the road - I have learned it is important to be ready!
So, with that on mind...I'm truly looking forward to the Mackinac Island trip!
-Jimmy
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